The Cooperative Research Centre for Living with Autism (Autism CRC) is the world’s first national, cooperative research effort focussed on autism. It provides the national capacity to develop and deliver evidence-based outcomes through our unique collaboration with the autism community, research organisations, industry and government.

QCIDD forms part of Program 3, which aims to support adults to find a place in society. Dr Cathy Franklin is leading our project to develop online tools, resources and training to improve health and wellbeing among autistic adults. Other Autism CRC teams members include postdoctoral research fellow Dr Katie Brooker and PhD student Pia Bradshaw. We will be updating our online tools and resources on the Health Hub on the Autism CRC website.

These are some of our projects:

The Autism CHAP

Led by past postdoctoral research fellow, Dr Anna Urbanowicz, we adapted the Comprehensive Health Assessment Program (CHAP) for autistic adults and adolescents with intellectual disability. 

Autistic adults, support people and health professionals were involved in the adaptation. The Autism CHAP was then piloted with 7 autistic adults, their support people and GPs. The Autism CHAP was further revised based on feedback from the pilot and input from autistic people.

The final version of the Autism CHAP is currently being edited and a research version for further testing will be available shortly. 

If you are interested in being involved in a larger evaulation of the Autism CHAP, please contact Katie Brooker.

GP Professional Development – check

The Royal Australian College of General Practitioners (RACGP) produces a Continuing Professional Development (CPD) activity called check. These are peer-reviewed clinic cases, written by expert clinicians. Each unit includes four to six clinical cases with answers, followed by 10 multiple choice questions (MCQs), as well as references and resources.

Our team contributed three cases on autistic individuals:

  • Daniel's dad is worried about his development. Paediatric health, unit 541, August 2017.
  • Charlotte's anxious and doesn't want to go school. Adolescent health, unit 542, September 2017.
  • Malcolm's behaviour is becoming increasingly difficult to manage. Vulnerable populations, unit 543, October 2017.

These activities are available to members of the RACGP via the gplearning portal.

Autism HealthPathways 

Lead by the Mackay Health Pathways team, we worked collaboratively to develop a suite of clinical pathways for primary care clinicians about autism. 

The Pathways launched in August 2019 and are available across the HealthPathways community in Australia, New Zealand and the UK.

Read more about it here: https://www.healthpathwayscommunity.org/News/Latest-Community-News/ArticleID/3072/HealthPathways-Mackay-puts-the-spotlight-on-Autism-Spectrum-Disorder