People with intellectual and developmental disability living with diabetes experience a number of challenges in self-managing their diabetes. A key barrier is lack of educational and self-management resources explaining diabetes and diabetes self-management in an accessible way as this population group experience cognitive and communication differences. There is also a lack of accessible information for support people (e.g., family members, paid support workers) about providing support to someone with intellectual and developmental disability living with diabetes.

In 2005, QCIDD developed Diabetes to the Point to fill this gap. The information on the website is now outdated.

QCIDD are working with the Mater Intellectual Disability and Autism Service (MIDAS) and the Queensland Endocrine and Diabetes Centre (QDEC) to update and further develop a suite of accessible online resources about diabetes and diabetes self-management for people with intellectual and developmental disability. The suite of resources will be evaluated and feedback sought from people with intellectual and developmental disability living with diabetes and their support people.

Advisory group 

The research team are currently looking for people with intellectual and developmental disability living with diabetes and their support people to join the project's advisory group. Advisory group members will be given a $100 gift card for each meeting. 

Advisory group members will help to update the website and tell the team what they think the website should look like. Advisory group members will also provide input into the research.

To join the advisory group, people will need to be over 18 and able to attend up to 10 meetings in 2020. 

Contact Katie Brooker to find out how to join: 

Tel: 07 3163 1982

Email: k.brooker1@uq.edu.au